Today

Today as I was holding Cayde as I do each day he was doing some rhythmic shaking that reminded me of when he was having some seizures about 6 weeks ago. It made me nervous. He was sleeping and I kind of jostled him a little and tried not to think much about it...until......we got his EEG results this afternoon saying he is indeed still having some seizure activity in his brain. I don't know why this is so hard for me after all that has happened, but I feel like this is breaking my heart... again...Today we made some good strides on getting his vent weaned then realize he is having seizures. My heart is aching. I hurt and honestly I am mad. MAD! (Breathe....1...2...3..4...5...6...7...It's not working!) LOL

Sigh.

We (Terah and I) did have a REALLY nice visit with Cayde today though. He is growing into such a big boy! We bathed him and dressed him in a super cute outfit and set him on my lap and he was just chillin with his eyes open for a while and just hanging out. It was lovely and fun and relaxing and good. (see facebook pictures soon)

Terah has been here for a week and she goes home tomorrow. I tried to tell her she will be missing her flight (same as I told Tawni when Tawni had to go home) and there won't be any more for at least another week. I am very blessed to have sisters that I am very close with, that I love and who love me. I love that my kids are close to their aunties. I think it's sad not everyone gets to have this experience of having sisters who are fabulous and fun and supportive and wonderful. But I am lucky to have them.

Please keep praying for my Cayde.