This morning before school the kids had some extra time so I turned on Oswald for them. Porter got really upset after a few minutes and was yelling, "MAMA! MAMA!" And pointing at Oswald. So we started the what is Porter trying to tell me game and as I noticed Porters very upset/mad face and Oswald juggling some fruit, I wondered if he could be upset cause Oswald was throwing food...? (I had already exhausted several other possibilities!)
"Porter, is Oswald throwing food?"
"YESH!" (the h adds a bit of emphasis for him. lol. it's very cute.)
"Do you not want him to throw food?"
"NO!"
"Is that naughty to throw food?"
"YESH!"
Ah...we are upset cause Oswald is breaking the rules. His brow was creased...He was honestly upset. He did not see the difference of juggling and throwing food. He might just be a boy after his mamas heart after all!
Tuesday, September 15, 2009
Saturday, September 12, 2009
Shower
Last night Katie gave me the most amazing shower. Lots of
others helped and brought the yummiest snacks! (Thank you!) And Everyone was soo generous! Cayde is a little spoiled guy already! I am going to link you to Katie's blog here. (I will leave it linked but I figured out how to thieve her pics - thanks Katie). LOL. I had such a great time and seriously everyone spoiled us! Thank you Thank you Thank you! Cayde has the handsomest clothes (TONS) and smell good lotions and shampoos (lots), a plethora of the softest, most lovely blankets. Diapers and Wipes! Cute plaques to put his hand and foot prints! And the sweetest handmade hooded bath towels. Can a boy be more loved and spoiled? I think not.Katie has been the most amazing support for us from day one with Cayde and with everything. I don't know what we would have done without her. I love you Katie! Thank you everyone, last night and just in general for being so supportive through Cayde's trials. It is really fun to celebrate his successes!
I cannot wait for him to come to us! (That cake says "Come home Soon Cayde" and has the cutest little baby on it with his bum in the air. Isn't the best when they sleep with their bum in the air?)
Sunday, September 6, 2009
Today on these Days....
I don't do a lot of daily-here is what we did today updates because...well..that's not the sort of blogger that I am. But occasionally one must break her own rules and do a simple update just because.
The purpose of this very basic update is just to let you know how Cayde is doing and of his progress. I have found in the past few days I have been giving lots (LOTS) of people the same update so I thought it called for.
He is doing well! Cayde is nearly 6 lbs! Nice, right? His Oxygen needs are low although as far as we know he still needs a little pressure meaning his lungs don't stay open the way they are supposed to. (Ours apparently don't close all the way-when you exhale...thus a collapsed lung if they do.) His oxygen sits around 30%. Room air is 21%. He goes as low as 24-25%. The pressure is at 3.0 litres per minute. It started at 4.0 and they dropped it to 3.5 then to 3.0. This last drop, he did not seem to react to at all which is wonderful! That means his lungs are getting stronger and doing more of the work themselves.
We are letting him sit on these setting for a few days and the plan is to drop it another 1/2 liter on Tuesday and it will continue to drop routinely until he is off the vapotherm and on the regular nasal cannula.
He has to have no apnea spells for 6 days to be able to come home and he is not having any! YEAH!!!!! Apnea is when both the breathing and the heart rate drop significantly.
He also has to be able to eat all meals by mouth. So far he is doing one a day. He does great and we are just taking it slowly...just because. Based on results he does better when we take things at his pace. I am good with that.
We had a change of doctor last week. They change out every several weeks since it is a teaching hospital. I was a little nervous cause I LOVED the last dr. Seems I will love this one too. She asked what my goal was to get him home. I thought that was an interesting question but I do indeed have a goal. His due date. September 20. I told her I would be ok with a week or two after as well but around that time is really what I was looking at. She said that was totally possible. It depends on Cayde of course.
He is finally starting to look like a newborn. That is funny to me since he is two and a half months old!
Allori is just as excited as we are to bring him home and does little things to get ready for that! Allori can write all of her letters and is starting to write words. She is so ready for Kindergarten.
She is so funny to me. She is very "fair." For instance if I am brushing her hair and she has tangles I will tell her I am sorry for hurting her. "It's ok mom, it's not you, it's the brush." Hahahaha. She wrote our last name the other day and I told her that was a picture I would like to keep. (She draws so stinkin many I feel bad but I have to tell her we can't keep them all.) Anyway I was telling her that I was so proud of her and I wanted to keep it. She says that she didn't do it by herself, daddy helped her. (Wayne did help her but only by telling her the order of the letters.) LOL
Porter is two. lol. (By that for those of you who cannot read my mind-it means he throws lots of fits. which means he spends a lot of time in time out but then gets lots of hugs!) He has taken up his vendetta with George again. Not sure why but George is now bunking in mom and dads room.
The purpose of this very basic update is just to let you know how Cayde is doing and of his progress. I have found in the past few days I have been giving lots (LOTS) of people the same update so I thought it called for.
He is doing well! Cayde is nearly 6 lbs! Nice, right? His Oxygen needs are low although as far as we know he still needs a little pressure meaning his lungs don't stay open the way they are supposed to. (Ours apparently don't close all the way-when you exhale...thus a collapsed lung if they do.) His oxygen sits around 30%. Room air is 21%. He goes as low as 24-25%. The pressure is at 3.0 litres per minute. It started at 4.0 and they dropped it to 3.5 then to 3.0. This last drop, he did not seem to react to at all which is wonderful! That means his lungs are getting stronger and doing more of the work themselves.
We are letting him sit on these setting for a few days and the plan is to drop it another 1/2 liter on Tuesday and it will continue to drop routinely until he is off the vapotherm and on the regular nasal cannula.
He has to have no apnea spells for 6 days to be able to come home and he is not having any! YEAH!!!!! Apnea is when both the breathing and the heart rate drop significantly.
He also has to be able to eat all meals by mouth. So far he is doing one a day. He does great and we are just taking it slowly...just because. Based on results he does better when we take things at his pace. I am good with that.
We had a change of doctor last week. They change out every several weeks since it is a teaching hospital. I was a little nervous cause I LOVED the last dr. Seems I will love this one too. She asked what my goal was to get him home. I thought that was an interesting question but I do indeed have a goal. His due date. September 20. I told her I would be ok with a week or two after as well but around that time is really what I was looking at. She said that was totally possible. It depends on Cayde of course.
He is finally starting to look like a newborn. That is funny to me since he is two and a half months old!
Allori is just as excited as we are to bring him home and does little things to get ready for that! Allori can write all of her letters and is starting to write words. She is so ready for Kindergarten.
She is so funny to me. She is very "fair." For instance if I am brushing her hair and she has tangles I will tell her I am sorry for hurting her. "It's ok mom, it's not you, it's the brush." Hahahaha. She wrote our last name the other day and I told her that was a picture I would like to keep. (She draws so stinkin many I feel bad but I have to tell her we can't keep them all.) Anyway I was telling her that I was so proud of her and I wanted to keep it. She says that she didn't do it by herself, daddy helped her. (Wayne did help her but only by telling her the order of the letters.) LOL
Porter is two. lol. (By that for those of you who cannot read my mind-it means he throws lots of fits. which means he spends a lot of time in time out but then gets lots of hugs!) He has taken up his vendetta with George again. Not sure why but George is now bunking in mom and dads room.
Rules
I am really not a fan of fake rules. Non rules. Lame rules. Rules for no reason rules. Whatever you want to call them. I don't like them. I think rules have their place and I even enjoy making a rule up on occasion. I have a hard time keeping my facial expressions in check when someone tells me a lame rule.
If the person has much of an intellect which at this point is of course questionable, they would for sure know by the look on my face that I think they are a total moron. I am really working on this. One really should not look at another one like he/she is a moron even when it is true. It's just not polite.
At the hospital they have these incredibly loud doors. I don't know how they can be so loud. Seriously as far as I can tell they do nothing but open and close. They have no special job like holding a seal like an airplane door does. That door has a very important job and if it wants to be loud, ok I can respect that. These doors do nothing but open. And close. But apparently they have a complex and would like to be paid attention to because they would scare the daylights out of a deaf 80 year old man.
I wouldn't be concerned with the sound the doors made except that there are itty bitties sleeping in the room the door opens up to. Why on earth would they put THAT door THERE? Again, please let me talk to whoever made THAT decision. Lamo.
Here's the weird part. There is a big sign saying only staff should enter that door. Hmmm. Why? Some of the nurses are door police and will tell parents not to use the doors. Only one has told me not to use it. I assume the rest of them realize it's a dumb rule and that it makes no sense. A pharmacist also told me not to use it. (I have only been told twice not to use it.) When she told me I asked her why not and she said smartly, "well cause that's what 'they' told me." Well by all means then. We must do what the ominous 'they' say to do!
If parents didn't use it, would this cut done on it's use? Not by a long shot. There are four babies in the room. So maybe a parent or two would use it in an hour but about 20 staff members go slamming in and out of it every hour making the poor babies jump. (Yes I have monitored it) What a lamo rule. If they are going to use it that often I just don't see how once or twice an hour more is really going to make any kind of difference but hey that's just my logic. And why would they have it? (The rule I mean.)
Parents please walk the long way around and use the quiet entrance. It's less convenient and more of a hassle. You probably just had surgery and are probably going through a tremendously stressful ordeal and to accommodate you we have built a breezeway that takes you an extra 5 minutes to get to your baby. Enjoy.
If the person has much of an intellect which at this point is of course questionable, they would for sure know by the look on my face that I think they are a total moron. I am really working on this. One really should not look at another one like he/she is a moron even when it is true. It's just not polite.
At the hospital they have these incredibly loud doors. I don't know how they can be so loud. Seriously as far as I can tell they do nothing but open and close. They have no special job like holding a seal like an airplane door does. That door has a very important job and if it wants to be loud, ok I can respect that. These doors do nothing but open. And close. But apparently they have a complex and would like to be paid attention to because they would scare the daylights out of a deaf 80 year old man.
I wouldn't be concerned with the sound the doors made except that there are itty bitties sleeping in the room the door opens up to. Why on earth would they put THAT door THERE? Again, please let me talk to whoever made THAT decision. Lamo.
Here's the weird part. There is a big sign saying only staff should enter that door. Hmmm. Why? Some of the nurses are door police and will tell parents not to use the doors. Only one has told me not to use it. I assume the rest of them realize it's a dumb rule and that it makes no sense. A pharmacist also told me not to use it. (I have only been told twice not to use it.) When she told me I asked her why not and she said smartly, "well cause that's what 'they' told me." Well by all means then. We must do what the ominous 'they' say to do!
If parents didn't use it, would this cut done on it's use? Not by a long shot. There are four babies in the room. So maybe a parent or two would use it in an hour but about 20 staff members go slamming in and out of it every hour making the poor babies jump. (Yes I have monitored it) What a lamo rule. If they are going to use it that often I just don't see how once or twice an hour more is really going to make any kind of difference but hey that's just my logic. And why would they have it? (The rule I mean.)
Parents please walk the long way around and use the quiet entrance. It's less convenient and more of a hassle. You probably just had surgery and are probably going through a tremendously stressful ordeal and to accommodate you we have built a breezeway that takes you an extra 5 minutes to get to your baby. Enjoy.
Saturday, September 5, 2009
4 large men
I have lots to be grateful for. I was especially grateful as I was in wal-mart today(where I avidly avoid these days for reasons of saving money and saving sanity) that I was not the man wrestling beneath 1000lbs of man power because he had tried to rip off a few bucks of things. A clear conscience and bruise free muscles, as well as the clear rap sheet seem much sweeter to me. (Seriously there were FOUR not very small, and I am being kind, men on top of one medium build very crazy out of control man. It was a little bit nutty.) But really, I was very glad i did not have 4 large men on top of me. Ouch!
I am also thankful that I have friends that I miss. I don't have a lot of time to be hanging out and doing cooking days and other fun things I would like to be doing but I am awfully thankful that I have friends that I love and who love me that I miss. How sad would life be if there were no one to miss?
I am thankful for preschool who has shown a shy little girl how to be a leader. On her second day of her second year it was like she was the old kid, the senior in the high school sort of thing. She was kicking a ball around with 4 boys and yelling out instructions to them. Ha! I loved it! I love her!
I am thankful for the hours I get to sit and hold/love/watch/touch/take care of my tiny little baby (who incidentally is growing at an incredibly fast rate! He is 5 lbs 3.5 oz now!)
I am thankful for a little boy who came into my life a year ago and gives me night-night kisses then when I leave the room throws George (his curious George monkey) on the floor every single night then gets sad and asks for George back. I love his beautiful smile.
I am thankful for a husband who loves me when I am sane and when I am wacky and when I am patient and when I am impatient (which is most of the time) and who NEVER yells at me, even when I probably deserve it, who rubs my achy back several times a week and is the most amazing dad. He is such a hard worker and so kind and good. I am thankful Heavenly Father gave him to me.
(I wrote this a week or two ago and thought I posted it....but I am still grateful these things! And that ugly cpap on Cayde's face....gone! now he is on the vapotherm which looks just like the nasal cannula but moistens and heats the air making it nice and fresh for his lungs. We have misplaced the camera cord so hopefully more pictures soon....? )
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