I don't do a lot of daily-here is what we did today updates because...well..that's not the sort of blogger that I am. But occasionally one must break her own rules and do a simple update just because.
The purpose of this very basic update is just to let you know how Cayde is doing and of his progress. I have found in the past few days I have been giving lots (LOTS) of people the same update so I thought it called for.
He is doing well! Cayde is nearly 6 lbs! Nice, right? His Oxygen needs are low although as far as we know he still needs a little pressure meaning his lungs don't stay open the way they are supposed to. (Ours apparently don't close all the way-when you exhale...thus a collapsed lung if they do.) His oxygen sits around 30%. Room air is 21%. He goes as low as 24-25%. The pressure is at 3.0 litres per minute. It started at 4.0 and they dropped it to 3.5 then to 3.0. This last drop, he did not seem to react to at all which is wonderful! That means his lungs are getting stronger and doing more of the work themselves.
We are letting him sit on these setting for a few days and the plan is to drop it another 1/2 liter on Tuesday and it will continue to drop routinely until he is off the vapotherm and on the regular nasal cannula.
He has to have no apnea spells for 6 days to be able to come home and he is not having any! YEAH!!!!! Apnea is when both the breathing and the heart rate drop significantly.
He also has to be able to eat all meals by mouth. So far he is doing one a day. He does great and we are just taking it slowly...just because. Based on results he does better when we take things at his pace. I am good with that.
We had a change of doctor last week. They change out every several weeks since it is a teaching hospital. I was a little nervous cause I LOVED the last dr. Seems I will love this one too. She asked what my goal was to get him home. I thought that was an interesting question but I do indeed have a goal. His due date. September 20. I told her I would be ok with a week or two after as well but around that time is really what I was looking at. She said that was totally possible. It depends on Cayde of course.
He is finally starting to look like a newborn. That is funny to me since he is two and a half months old!
Allori is just as excited as we are to bring him home and does little things to get ready for that! Allori can write all of her letters and is starting to write words. She is so ready for Kindergarten.
She is so funny to me. She is very "fair." For instance if I am brushing her hair and she has tangles I will tell her I am sorry for hurting her. "It's ok mom, it's not you, it's the brush." Hahahaha. She wrote our last name the other day and I told her that was a picture I would like to keep. (She draws so stinkin many I feel bad but I have to tell her we can't keep them all.) Anyway I was telling her that I was so proud of her and I wanted to keep it. She says that she didn't do it by herself, daddy helped her. (Wayne did help her but only by telling her the order of the letters.) LOL
Porter is two. lol. (By that for those of you who cannot read my mind-it means he throws lots of fits. which means he spends a lot of time in time out but then gets lots of hugs!) He has taken up his vendetta with George again. Not sure why but George is now bunking in mom and dads room.
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